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Sjogren’s Awareness Month – Understanding The Invisible Disease 

In honor of Sjogren’s Awareness month, eye care providers are helping to spread the word to increase awareness about this hard-to-diagnose disease.

Sjogren’s is a systemic autoimmune disorder that can affect the whole body. One of the primary symptoms is excessive dryness particularly in the eyes and mouth. Other serious symptoms include chronic fatigue and pain, specifically in the joints, as well as major organ dysfunction. The syndrome also increases chances of neuropathies and lymphomas.

The severity of the disease varies greatly, ranging from mild discomfort to debilitating symptoms that can seriously impair normal functioning in everyday life. Early diagnosis and treatment can prevent serious complications and improve quality of life. There is currently no cure for Sjogren’s, yet there are treatments for many of the individual symptoms. On average patients are prescribed upwards of 8 medications to treat the wide range of symptoms.

Women are nine times more likely to develop Sjogren’s than men and diagnosis usually occurs around the age of 40. Unfortunately, because the symptoms vary from person to person, and the disease often occurs in the presence of or mimics other diseases (such as lupus, rheumatoid arthritis, menopause, allergies or multiple sclerosis) the disease is often misdiagnosed or overlooked. Further, because the symptoms can affect different parts of the body system such as the teeth, eyes or musculoskeletal system, various health professionals are sought to diagnose or treat specific symptoms (such as rheumatologists, dentists or eye doctors) while the big picture is often missed. On average it takes almost three years to obtain a Sjogren’s diagnosis once symptoms are noticed.

Since dry eye is one of the most common early symptoms of the disease, there has been an effort to educate eye care providers to recognize and to be aware to look for symptoms of the disease. Patients also need to be aware and proactive about speaking to their health care providers about potential diagnosis and treatment. Knowing the risk factors and symptoms can be imperative to a faster diagnosis.

Your eye doctor may be able to detect and diagnose Sjogren's syndrome from dry eye symptoms as well as other diagnostic tests and review of symptoms. With this diagnosis the treatment will be different from typical dry eye disease. Since it is an autoimmune disease, lubricating eye drops may provide temporary relief but will not address the source of the problem. Your doctor may prescribe newer cyclosporine drops as well to treat the inflammatory response. If you have dry eyes and typical treatments aren’t working, it may be worthwhile to ask about Sjogren’s.

Sjogren’s patients often feel misunderstood because most of the debilitating symptoms are not visible to others and the disease is often not recognized largely due to a lack of awareness. By increasing both public and professional awareness, the goal is to reduce diagnosis time and to advance research on the cure for this disorder.

As of Tuesday evening, March 17, the Centers for Disease Control and Prevention have recommended all routine eye care be deferred until further notice in order to slow the transmission of COVID-19 throughout our community.

We will remain available to triage eye emergencies as well as help you with routine matters during this challenging time.

During this period of social distancing and quarantine, we must all do our part by restricting activities outside the home except for getting medical care.

⦁ Routine Eye Exams: If you are scheduled for a routine eye examination appointment for the remainder of March and early April, we will reschedule your appointment. As of March 18, 2020, we will begin rescheduling routine eye examination appointments for April 8, 2020 and beyond.
⦁ I need to replace my glasses. What do I do? Please contact us at phone number: 916-971-3937, text number: 916-919-8877, or info@seeustosee.com. We may be able to extend your prescription during this time and will help you with your eyewear needs.
⦁ I’m nearly out of contact lenses. What do I do? Please contact us at phone number: 916-971-3937, text number: 916-919-8877, or info@seeustosee.com. We may be able to extend your prescription during this time, and/or place an order for your contact lenses and have them shipped to your house.
⦁ I need a refill on the medication prescribed to me by the practice. What do I do? Please contact us at phone number: 916-971-3937, text number: 916-919-8877, or info@seeustosee.com. We can transmit a refill for your prescription directly to your pharmacy so that you have the medication that you need.
⦁ What about an eye emergency? What can I do? If you have an ocular emergency, we are, as always, available to help you at any time. Call 916-919-8877 and wait for instructions at the end of the message.

Drs. Schauffele & Fleischmann will do their best to accommodate emergencies in the office whenever possible.

We have asked the majority of our staff to stay home until further notice to protect them, our patients, our community, our nation, and our planet. Despite the financial and emotional hardships this will cause, we ask every one of you to do the same.

Together we will weather this storm.